Sickle Cell Partners of the Carolinas

Our Mission

We seek to provide a network of support for patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.
Who We Are

Sickle Cell Partners of the Carolinas (SCPOC) is a non‐profit 501c (3) tax exempt organization that exists to "partner" with anyone working to make a difference in the lives of patients and families affected by Sickle Cell Disease. SCPOC was formed in January of 2009. At that time, patients, families and members of the medical community came together informally to meet and discuss ideas involving care and support in the Sickle Cell community. From there, Sickle Cell Partners of the Carolinas came into being and is an organization that consists of patients of all ages, parents, families, caregivers, healthcare workers, social workers and an at large community that cares deeply about those affected by Sickle Cell Disease.

The need for a support organization was expressed to engage patients and families affected by Sickle Cell Disease and Sickle Cell Trait which are inherited blood disorders. From the beginning, the organization has sought ways to make Sickle Cell Disease a part of the medical dialogue in our homes, in our schools, and in the community at large. As a non‐profit organization, SCPOC seeks to be among those providing support and awareness for patients and families. As our name indicates, we are partners in this very important endeavor. By partnering with community organizations, medical facilities and other organizations, we hope to build on providing support, raising awareness and advocating for a cure.

“SICKLE CELL DISEASE… LET’S TALK ABOUT IT” FAMILY FUN DAY

Sickle Cell Partners of the Carolinas is grateful to have the support of Vertex for our Sickle Cell Family Fun Day on Saturday, April 29, 2023. This is event is designed for patients and families affected by Sickle Cell Disease and the community at large. This will be the fourth event of this type presented by Sickle Cell Partners of the Carolinas. We look forward to an afternoon of genuine discourse about Sickle Cell Disease and enjoying the company of others who live with this hereditary condition. We are grateful to Vertex for partnering with us on this event. Please see the link below to review the latest research on how Vertex is working to improve the lives of individuals living with Sickle Cell Disease and Beta Thalassemia.

https://news.vrtx.com/news-releases/news-release-details/vertex-and-crispr-therapeutics-complete-submission-rolling?fbclid=IwAR1a11qwwV8hBuTuXWDJSusauCMVhQicu_giQD-BrxHR1-dKu7NEeXIcqFw